Facing myeloma with strength and support ... move forward one step at a time
Living with relapsed or refractory multiple myeloma (RRMM) can feel uncertain. Treatments, side effects, emotions, and plans may shift. But even after relapse, there are ways to feel more prepared, more connected, and more in control.
That’s where Myeloma and Me comes in. This free website offers a simple 3-step program to help patients and their care partners take on everyday challenges—from preparing for appointments to setting personal goals, managing emotions, and finding support that fits your life.
Relapse doesn’t just change your treatment. It changes your decisions. This first step helps you think through your personal priorities by focusing on what matters most to you now—not just medically, but emotionally and practically.
- Identify what you want out of treatment and daily life
- Think through goals and values that guide your decisions
- Use worksheets and tools to capture your top priorities
Whether it’s with your healthcare team or your family, honest and open conversations can make a big difference. This step helps you prepare for appointments and talk about what you need.
- Get tips on how to bring up tough topics
- Use a printable checklist to prep for doctor visits
- Learn how to advocate for yourself or a loved one
This final step helps you and your healthcare team create a plan that supports your goals beyond treatment. It offers changes that can improve how you feel day to day—physically, emotionally, and mentally.
- Explore small lifestyle changes that can boost energy and mood
- Learn how daily habits affect your day-to-day life
- Find ways to cope with difficult emotions
- Stay connected to parts of life that matter most to you
Support for care partners at every step
Myeloma and Me includes practical tips for care partners facing the challenges of RRMM. It offers guidance for navigating appointments, managing emotions, and finding support for both the person you’re caring for and yourself.
- How to prepare for appointments together
- What to do when you're feeling overwhelmed
- Ways to reconnect and build in moments of joy
The Value of Everyday Life
The journey after relapse can be difficult, but it doesn’t have to be confusing. Myeloma and Me offers structure, support, and small steps that help people and their loved ones move forward, together.
Take the first step today at MyelomaandMe.co.uk