Being a caregiver to a child with cancer

Caring for a child with cancer can feel overwhelming, heartbreaking, and at times isolating. Your natural instinct may be to focus solely on their needs, setting aside your own wellbeing and other needs. However, taking care of yourself is just as important. By prioritising your mental and physical health, you can be a stronger, more present caregiver.^1,2

Every parent's experience is different, and it's normal to feel a wide range of emotions like grief, stress, or even guilt.^1,2,3 There’s no single way to manage these feelings, but small steps can make a big difference. 

Here’s a guide to help you care for yourself and cope during your child’s health journey.

Record or write down conversations with the care team

It’s normal to feel upset or distracted during discussions with your child’s healthcare team. Between processing emotions and taking in a lot of medical information, it’s easy to forget what is being said. But it’s important to record and remember what is being said. 

You might find it useful taking a notepad and pen, to jot things down. Or, if you'd rather focus on the appointment instead of worrying about taking notes, just let the doctor or nurse know you'd like to record the audio. You can easily do this with a smartphone. This way, you’ll have a clear record to refer back to when you need it.⁴ 

Let friends and family know how they can help

People around you want to help, but they may not know what you need. It’s okay – and helpful – to be specific with your asks. For example, “Could you go food shopping for me on Sunday?” or “I could use help walking the dog”. Clear requests make it easier for loved ones to step in and support you in meaningful ways.⁵

Join a support group for caregivers

Connecting with others who understand your experience can bring comfort and insight. Many care teams can suggest local or online support groups for parents and caregivers. These groups offer a safe space to share your feelings and receive encouragement from others who “get it”.^5,6

Speak to a financial support group

If you’ve had to stop working or cut back your hours, money worries can quickly add to your stress. Remember, you’re not alone in this. Reach out to local or online support services. They understand what caregivers are facing and can bring both relief and practical help when you need it most.⁷

Choose simple, healthy meals when you can

Feeding yourself well supports your health and energy during this demanding time.⁸ If you enjoy cooking, preparing meals in batches can make it easier to eat well on busy days. If you don’t have the time or energy, look for healthy pre-made options when shopping, or ask a friend or family member if they can cook for you occasionally.

Find an activity that helps you de-stress

There’s no right or wrong way to reduce stress – what matters is finding something that gives you relief, even for a short time. For some, meditation or journaling is helpful. For others, it might be a walk, listening to music, or even gardening. Choose whatever makes you feel a bit lighter.^5,8

Look for ways to fill your time at the hospital

You may spend long hours at clinics or hospitals. Even light movement, like gentle stretching or walking along hallways can help relieve stress and support your sleep. You could also fill your time with reading, writing, or listening to music or a podcast through some headphones.⁵

Find strength in shared moments

Sharing a laugh, watching a film together, or spending quiet time with those you care about can lift your spirits. Making space for these moments is just as important as handling logistics and appointments. Connection with friends and family can help everyone cope a little better.⁴

Being a caregiver for your child is a journey that asks a lot of you. You don’t have to do it alone. Accepting help, caring for yourself, and taking one step at a time are all ways to stay resilient and able to care for your family. Every small step of self-care strengthens your ability to be present for your child and those you love. Reach out if you need support and know that there are people ready to stand by your side.