Being a caregiver to someone struggling with fatigue

If you are caring for someone with cancer, you may have noticed a change in their energy levels. Fatigue is one of the most common symptoms experienced by people with cancer, affecting over 4 in 5 people (over 80%) diagnosed. It can leave people feeling physically drained and mentally worn out.¹

Understanding more about cancer-related fatigue may help you support the person you’re caring for in a helpful and compassionate way. Below, we’ll explore the differences between regular tiredness and fatigue and share some practical ways to help you support your loved one.

Understanding cancer-related fatigue  

The fatigue doesn’t always improve with sleep  

Feeling very tired, or cancer-related fatigue, can be a symptom of cancer itself, especially if it’s more advanced. But it can also be caused by side effects of treatments or other factors like anaemia (which means having a lower-than-normal amount of red blood cells), pain, anxiety, trouble sleeping, or problems with eating and drinking. This type of tiredness is different from regular tiredness – even with plenty of rest or sleep, the feeling often doesn’t go away.²

It can affect mental health  

The physical impact of fatigue, such as not being able to manage day-to-day activities, often takes a toll on mental health. Your loved one might feel frustrated, overwhelmed, or hesitant to share their struggles, perhaps worrying that raising concerns could affect their treatment plan.³  

Tips to share with someone struggling with cancer-related fatigue

If you’re supporting someone with cancer, then you may be faced with the challenges of cancer-related fatigue. Encouraging your loved one to take small, positive steps can make a big difference in improving their energy levels and overall wellbeing.^2-8 Here are some practical ways you can guide them to cope with their fatigue.

Take short rest breaks  

It’s fine to have naps – but instead of napping too long, which may affect night time sleep, suggest short rests of under 30 minutes during the day. These brief moments of relaxation can help recharge their energy.²  

Prioritise restful sleep  

Fatigue and sleep challenges are common for people living with cancer. Encourage your loved one to speak to their care team for tailored advice to manage these issues and regain energy. Small changes, like a calming bedtime routine or light activity, can help them feel more in control.⁴ If they drink coffee, make sure it’s avoided at least 4 hours before bedtime.²

Speak to their care team about exercise  

Although it may seem surprising, gentle physical activity and frequent movement can sometimes help with fatigue.⁵ Suggest your loved one asks their care team about safe ways to incorporate more movement into their days during treatment. The care team can give suggestions on ways to increase movement and may recommend some exercise routines.⁶

Focus on a balanced diet

Eating well and staying hydrated can help to boost and maintain energy levels. Help your loved one to get a wide range of nutrients by making sure they are eating a variety of nutritious foods. For example, foods like bread, rice or pasta can provide energy, while foods like beans, fish, or chicken are good sources of protein, vitamins and minerals. Encourage them to drink 6 to 8 glasses of fluid to stay hydrated.⁷ Their healthcare team can give them tailored advice and useful tips on this.⁸

Choose low energy activities and hobbies

Relaxation activities like yoga, tai chi and stretching, or meditation and mindfulness exercises can help lower stress and help ease fatigue.² Other activities such as listening to an audiobook or podcast – perhaps something uplifting and inspiring – can be a great way to stay occupied without using too much energy.⁸ 

Focus on priorities  

Support your loved one in saying no to commitments that aren’t essential. It’s okay to skip or reschedule activities to keep some energy and reduce stress. Gently encourage them to let others take care of heavier tasks like vacuuming, gardening, or taking out the rubbish. You might also suggest asking a friend or relative to do their shopping or using online shopping with a home delivery service to make things easier.⁸

Caring for someone with cancer-related fatigue can be difficult but understanding what they’re going through and finding solutions that fit their needs can make a real difference. Through sharing small, manageable steps, you can work towards managing cancer-related fatigue together. Remember, every effort to support your loved one, no matter how small, is meaningful. 

For more information on coping with cancer-related fatigue, you can read our article by clicking here.